We had a marathon visit with the cardiologist today. We were at Children's for 5 hours.
Chase continues to make progress. He is almost 8 pounds. He had an echo and EKG today. The dr said that overall the echo looked good. He has some slight issues, but nothing abnormal for his surgery and diagnosis and no obstruction of the pulmonary veins which is the BIG concern. The dr took him off oxygen while we were in the office and he did really well. Once we get a pulse/ox monitor in our home (s/b tomorrow morning), we can take Chase off the oxygen. Yeah! Also, we can start Chase on breast milk! He will be taking the milk through the feeding tube still, but we are so glad to move past the portagen! We will have a chest x-ray next week to ensure that Chase is tolerating the breast milk. Please pray for good results. : ) We will be having a swallow study tomorrow....Chase is still having issues with oral feedings. We are working with a speech therpist in our home, but if his issues don't improve soon, we will start seeing a more specialized group at Our Children's House at Baylor. I have a feeling that the oral feedings are going to take a while. Chase's surgeon said to expect it and I think he was right!
Thanks for checking on us and for keeping us in your prayers!
Please also remember our sweet friend James and his Mom and Dad in your prayers. James' hands were badly burned during an accident at a cookout this weekend. They are beginning a journey at the Parkland burn unit and at Children's.
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This all sounds really good! YEAH breast milk!!! I know that he will just grow and grow on it! We miss you guys! Jason "talked" to Hunter and we wish we could be there for Thanksgiving but Jason has to work but I think we are going to try to come when he is off Yeah!! Miss you talk to you soon!
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